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The World Economic Forum (WEF) has released the genomic data policy framework and six ethical points to address the lack of diversity and inclusivity in genomic data collection and research. The policy framework was developed in partnership with more than 30 global leaders. Elissa Prichep, Project Lead of the WEF said that the lack of diversity in research studies means non-white minority populations may receive less accurate preventative care, less reliable diagnostics, and less targeted treatments. The whitepaper titled the Genomic Data Policy Framework and Ethical Tensions, offers case studies and set of questions to promote discussions about ethical tensions related to the collection and use of genomic data.
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Santé numérique: applications technologiques
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